I was profoundly impressed by twin twelve year old boys that I met in the restaurant today. They were polite and sociable. I asked if they played sports, as this is a.topic.rather familiar to tween boys.
Their mother shared that they were recently pulled from all sports activities, once it was discovered that they, and their brother, suffer.from Marfan Syndrome, a genetic disorder that affects connective tissue throughout the body. It's often the cause behind the tragic stories we hear where a student athlete mysteriously collapses and dies on the field.
In most cases, it goes undiagnosed. In their case, an autopsy following their grandmother's death revealed the disease. Genetic testing confirmed its presence for these boys.
They were going on "The Superman, " our tallest, fastest roller coaster, one last time. Their mom had conceded, even though any thrill ride poses a.risk. This would be.their last season of rides, as the disease progresses with age.
Once again I'm deeply grateful that our boys are healthy. I try to imagine what it is like- living wit the possibility of a collapse like the twins' mom.
But I can't think for long. It's past midnight and I get up at 6 a.m. to take the boys to football practice. They have basr line concussion screening tomorrow
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